Wiskott-Aldrich Syndrome Quality of Life Survey


PI: Robert Sokolic
Collaborators: Mort Cowan, Christina Mangurian, Sumathi Iyengar, James Varni, Chris Salchunes

Wiskott-Aldrich Syndrome (WAS) is a rare genetic disorder that causes immunodeficiency, thrombocytopenia, and eczema. This team is evaluating the impact of WAS on families, depending upon what treatment they receive. Investigators hope that their findings will help families make informed decisions with the difficult treatment choices they are provided.